When my son, Sebastian was born, he was such a happy little guy, but I would notice in the evenings that he would get so fussy, scream, arch his back and be generally inconsolable. He would constantly nurse to try to help his tummy feel better. He also had very frequent green mucous stools: pretty typical symptoms for protein intolerant kiddos. In any case, the pediatrician we had at that time told me it was normal. Being a first time mom, I listened to this, at first, since it was coming from a doctor. At 2 months, I found blood in my son's stool and took it in and it tested positive for blood, which is when he was diagnosed with MSPI.
After eliminating all milk and soy, my son made a dramatic improvement from where we started, but I could tell he still was not comfortable and after two months was still having blood in his stools. At this point, I started a food diary to try to identify what my son was reacting to. Through this, I was able to identify that corn, eggs, citrus, coffee, and chocolate were all offenders. At this point, I was still trying to figure out how to avoid corn and Sebastian was still having issues, so I eliminated the top 8, plus the items mentioned above and beef, apples, pears, and some other miscellaneous items.
For a couple of months, I was pretty much on a TED diet, just to get to a good baseline. My son was finally doing well and not having the discomfort that he had been having. I also switched to a new pediatrician (nurse practitioner and lactation consultant) just before starting solids, she is very knowledgeable and has been great to work with. It is muchmore difficult when you are managing a TED diet, food diaries, and trying to keep your baby on the growth chart, without the support of your child's doctor. It was so nice to find a medical professional who understood what we were going through and had experience with many food intolerant babies. When my son started solids at 6 months, his reflux went out of control. With her help we found a medication that worked and he starting passing food trials.
At 15 months, Sebastian was still nursing and had 23 foods that he could safely eat. He was at 50% for height and 1% for weight. Trying to help him gain weight has been and still is a constant struggle, but since he is staying on the curve and meeting developmental milestones, his Doctor was happy. Now close to two years later, he has jumped up to 12% for weight and the list of foods his is intolerant to is finally shorter to name off, then the safe foods. He still has several foods that he is intolerant to and reflux, but has come a long way. I have learned so much from all the other parents struggling through this and know that we would not be where we are today, if not for all the support from other parents along the way.
After eliminating all milk and soy, my son made a dramatic improvement from where we started, but I could tell he still was not comfortable and after two months was still having blood in his stools. At this point, I started a food diary to try to identify what my son was reacting to. Through this, I was able to identify that corn, eggs, citrus, coffee, and chocolate were all offenders. At this point, I was still trying to figure out how to avoid corn and Sebastian was still having issues, so I eliminated the top 8, plus the items mentioned above and beef, apples, pears, and some other miscellaneous items.
For a couple of months, I was pretty much on a TED diet, just to get to a good baseline. My son was finally doing well and not having the discomfort that he had been having. I also switched to a new pediatrician (nurse practitioner and lactation consultant) just before starting solids, she is very knowledgeable and has been great to work with. It is muchmore difficult when you are managing a TED diet, food diaries, and trying to keep your baby on the growth chart, without the support of your child's doctor. It was so nice to find a medical professional who understood what we were going through and had experience with many food intolerant babies. When my son started solids at 6 months, his reflux went out of control. With her help we found a medication that worked and he starting passing food trials.
At 15 months, Sebastian was still nursing and had 23 foods that he could safely eat. He was at 50% for height and 1% for weight. Trying to help him gain weight has been and still is a constant struggle, but since he is staying on the curve and meeting developmental milestones, his Doctor was happy. Now close to two years later, he has jumped up to 12% for weight and the list of foods his is intolerant to is finally shorter to name off, then the safe foods. He still has several foods that he is intolerant to and reflux, but has come a long way. I have learned so much from all the other parents struggling through this and know that we would not be where we are today, if not for all the support from other parents along the way.
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